Breast Cancer Advocate
Julia Maues was diagnosed with HER2-positive breast cancer while pregnant at age 29. After her son was born, she found out the cancer was metastatic and had spread to her brain, liver and bones. She has been in active treatment since 2013.
For the first few years after her metastatic diagnosis Julia did not get involved in support groups or advocacy. When her oncologist asked her to speak at a fundraiser for his research she realized the power of sharing her story. “Being able to help other patients going through similar struggles and to help researchers better work for us patients have been extremely rewarding,” she says. “As I have gotten more involved with breast cancer advocacy I have become more aware and outspoken about the struggles that the metastatic breast cancer community, in particular, faces.”
Julia is a member of Georgetown Breast Cancer Advocates, a group at Georgetown University’s Lombardi Comprehensive Cancer Center, in Washington, D.C., that works with researchers, clinicians and other stakeholders to ensure that research is patient-centered, innovative and accessible. She is a graduate of Living Beyond Breast Cancer Hear My Voice program, and in 2018 was a panelist at the San Antonio Breast Cancer Symposium as well as an Alamo Foundation scholar. In addition, Julia has served on American Society of Clinical Oncology (ASCO) guideline panels, as a reviewer for the Department of Defense Breast Cancer Research Program and is an active member of local support groups in D.C. and closed Facebook groups for people with metastatic breast cancer.